Simone van Kraayenburg

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PC van der Walt
6th August 2015
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Jonjo shares his success story
6th August 2015
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Simone van Kraayenburg

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simone-van-kraayenburg

Is there a real age for cancer? I thought it was something you mostly get when you old.  Well, 4 months before my 21st birthday and while on my gap year in England, my whole life was turned around. On the 24 March 2010 I was diagnosed with MDS monosomy 7, stage 3/4. It is a bone marrow cancer, also known as pre-leukaemia which is most commonly found in the elderly. I am noted as the youngest in South Africa with MDS.

I returned home 4 days after my diagnosis, leaving the rest of my fabulous gap year behind. This was so unreal, not only did we get a second opinion, we got four. I was told by numerous doctors that chemotherapy would make no difference to my condition and my only chance of survival was to have a bone marrow/stem cell transplant.

The side effects made me consider if I should take a chance and play some Russian roulette with my life. The thought of becoming infertile was and still is unbearable. Once again, I hope for another miracle.

The big donor search began shortly after I came back. My only sibling was not a match nor was any other family member. Sadly no local matches were found either. Finally after many fundraisers and disappointments, my life saver was finally found in Germany.

We took the long drive from Pretoria to Cape Town (I was not fit to fly) to meet with Prof Jacobs at Constantia Berg Medi-Clinic. After another long drive 2 weeks later, we arrived in Cape Town for the big “thing”.

I finally had my transplant in December 2010. It was one hell of a test for me. I was so sick from the strong chemo, not being able to eat, having a feeding tube etc. Shortly after my transplant this all cleared as my new cells made themselves at home in my body.

After a 3 ½ week stay in isolation (with the help of the most amazing staff members – my angels) the big “thing” was over.

I am currently still in recovery and will hopefully be returning to Pretoria soon. I am getting stronger everyday and have had no major complications thus far.

If it was not for that one person who took the time to join a registry, I would probably not have made it to my 24th birthday. Thank you. Thank you. Thank you.

A special thank you to The Sunflower Fund, in particular Lizelle – for your great support and comfort. I take an official pledge to devote any chance I get, to help increase the bone marrow registry. Also a big thank you to the wonderful staff members at Constantia Berg Medi-Clinic. Most importantly, thank you Prof Jacobs for guiding me through this and holding my hand every step of the way. I wish you a happy retirement, you sure have left a legacy!

My trip to University has been postponed to next year, but I look forward to doing some short courses this year and being grateful everyday for being alive.

I also look forward to getting involved with The Sunflower Fund in creating awareness. I want every High school to get a talk of how important it is to become a donor. The financial implications of having to resort to an international donor, is major. I am thankful we had great friends to help raise funds.

There is a big miss-conception of the process of being a donor. It does NOT involve any big needles that go into your bones, at any time! That includes getting registered, further compatible testing and the harvesting process itself – (The big needles are left for us brave patients.) I did a stem cell harvest myself as a back-up, and let me tell you, it’s such a painless procedure. To think that it can save lives is incredible! The worst of it is… you getting bored sitting there while the harvest takes place. Having a migraine is worse than donating stem cells. Please spread this very important detail to everybody you know! Together, we can save each other.